The incorporation of CdLS medical management into a multispecialty clinical approach has not yet yielded a scientific investigation, indicating an opportunity for the proposed research. Furthermore, clinical studies that integrate pediatrics, genetics, and the management of multisystem disorders in general are underrepresented in the medical and scientific literature today. More generally, research evaluating perceptions of a multispecialty approach to multisystem medical management has been mostly limited to the fields of oncology and pediatric medicine. Existing research has demonstrated that patients, families, and caregivers perceive many benefits of a multispecialty clinical approach to multisystem medical management. disorders. First, in a review of multispecialty clinic operations, Makary (2011) explains that one of the major advantages of a multispecialty clinic is their inherent ability to diagnose critical problems early in the disease process. These clinics also have the potential to intervene before further progression of the disease. In this case, patient safety improves when all treatment options are discussed among members of the multispecialty team, rather than depending on accurate and rapid transmissions of medical communications between separate physicians. In this way, multidisciplinary teams aim to make a complex healthcare system safer and more navigable for the patient (Makary, 2011). Second, patients cited greater satisfaction in multispecialty clinics compared to traditional clinics due to the common presence of a practice coordinator or nurse navigator (Gantos-O'Brien, 2010; Lamb et al., 2011). . Gantos-O'Brien reported that the benefits patients perceived were access to an individual who served as a constant point of... center of paper... nursing contributions were often ignored or not expressed (Lamb et al. , 2011). Therefore, Lamb (2011) called for increased leadership training for all medical professionals involved in multispecialty teams. Research investigating families' satisfaction with a multispecialty pediatric clinic found that families identified several logistical issues as disadvantages to attending a multispecialty clinic (Schurman and Friesen, 2010). . Compared to a traditional clinic, families were dissatisfied with increased paperwork, scheduling issues, travel required to reach the multispecialty clinic, time spent waiting before the team-family meeting, and length of visit (Schurman and Friesen, 2010). Indeed, many of these disadvantages are inherent to a multispecialty clinical approach and would require additional financial or personnel resources to better meet patient needs..